An SOS plea has been made by Wales’ leading Motor Neurone Disease charity to appeal for help and support from the Welsh Government.
The appeal, which was made on Global MND Awareness Day and is supported by Samuel Kurtz MS, aims to improve the quality of life of those with MND in Wales by:
- making investment in MND research in Wales;
- improving care and services;
- recruiting an all-Wales lead consultant neurologist for MND with a care and research remit;
- providing safe and accessible homes to allow those with MND to live safely, independently and, most importantly, with dignity.
Campaigners were joined by politicians at the Senedd last Tuesday afternoon.
Speaking about the campaign, Senedd Member for Carmarthen West & South Pembrokeshire, Samuel Kurtz MS, said:
“This is an incredibly important opportunity to raise awareness about MND. There’s so much that must be done to improve the quality of life of those living with this awful disease.
“MND is devasting, both for the individual living with it and their family. There is more that we can be doing to ensure that those with the disease don’t have to face unnecessary hurdles and difficulties.
“There is little time to waste, we must see action and support for those that need it most – that’s why this SOS appeal is so important.”
Sian Guest, who works for the Motor Neurone Disease Association, added:
“It is clear to us that we need to do more in Wales to ensure the lives of those with MND are not made more difficult. I know the difference good services can make to the lives of people living with MND.
“The rapid progression of MND is particularly cruel and this why what we are calling for needs to be answered swiftly.
“We urge the Welsh Government to heed our desperate calls to improve the lives of those with MND.”
You can find out more information about MND by visiting www.mndassociation.org.
